Patient
Last on 25 months ago
368 points.
Guru

Amanda

Basics

First Name Amanda
Last Name Brown
Sex Female
Age 23
Date of Birth April 28, 1988
Marital Status In a Relationship
Current Location NY
Hometown n/a
My Relation to Celiac Disease Patient
Tell us about your experience with/connection to Celiacs

The morning that my life was changed forever, I woke up to the ringing of my phone.  I slowly crawled to the edge of my bed and picked up the phone.  Little did I know that my doctor was the one calling me to tell me that I had Celiac Disease.  A disease for me meant that I was going to die or that I needed serious help and that I would never again have a normal life.  Well…I later found out that all of those ideas were not true.  Celiac Disease, as defined by National Anemia Action Council, is a “disorder that causes damage to the intestines when gluten is eaten (protein in grains like wheat, oats, rye, and barley).”  For me, this disease means having separate dishes and silverware; my boyfriend having to mouth wash every time he wants to kiss me; constantly worry about contamination; changing the food I eat along with my shampoo, conditioner, and makeup; reading everything before being able to eat; and it also means only being allowed to eat in certain places.  When my friends were first told that I had Celiac Disease, most of them started to cry and that broke my heart.  I mean, I didn’t want my friends to look at me differently just because I have a disease.  I told them I wasn’t going to die as long as I stuck to the gluten free diet.  On the other hand, some of my friends totally belittled my disease and told me that it wasn’t a big deal.  I can understand that it is sometimes hard for people to imagine their life in the shoes of someone else, but I expected more from my friends to try and see how this was going to affect me.  Celiac disease is a big deal.  Once I finally got the point across to my friends, we decided to try and raise money for the Celiac Disease foundation to help find a cure for this disease.  By my friends and family becoming involved in my life and learning and accepting my disease, together we have worked to do a lot of good and I have become more confident in myself along with becoming a more positive person.

Quick Bio

I am a dance teacher and  currently studying to be a teacher.  I am currently attendng school 4 hours away from my family and friends which makes it very hard for me to deal wtih the Celiac disease.

Who Can View My Profile Public

Education

Highest Level of Education Some College
Academic Experience

Currently attending SUNY Oneonta.

Work

Occupation

Student

Work Experience

Studying to be an elementary School teacher.

I have been teaching dance since I was twelve.

I teach Microsoft office programs for TIPS.

Favorites

Amanda has not filled out this part of their profile yet.

Medical History

Amanda has not filled out this part of their profile yet.

Contact

You must be signed in to view this member's contact information.

Sign In or Join WeAreCeliac.org!

Celiacs Info

Date Diagnosed

July 18, 2008

Name of Doctor

Pervil

Symptoms Before Diagnosis

Pain on my left side, weight loss, constant nausea, fatigue, mood swings, inable to focus, lack of appetite, in a constant daze causing my school grades to suffer

Diagnosis Info

I am on the Celiac Genetic Testing scale, a 7 out of 8.

Treatments and Therapies

Gluten-free as well as wheat-free diet.

Side effects of Gluten Free Diet

While being on the gluten-free diet, I have been feeling much better but still having some attacks of pain.

Treatment Recommendations

Follow your doctor's instructions to the extreme. Don't be lazy!

Treatments you don't Recommend

Don't ever think that cross contamination is not a big deal, because it is.

How are you feeling now?

Still in pain everyday...constant reminder of what I have...

Smoker?

No

Dietary Details

Vegetarian, but I have recently began to eat chicken.