Amanda's Journal
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May 14, 2009
UPDATE
So...I know it has been a while since I have been on the site...but I just couldn't handle the sadness of having a disease for a while...I am working hard now to use my negative energy for better things such as attending R.O.C.K (Raising Our Celiac Kids) meetings and participating in the L. Lodico Walk on May 31st with my family and boyfriend. My whole famiy has been helping me cope with my new dietary changes. My best friend Melissa is the best...everywhere we go, she is always thinking about food being "Amanda Friendly" before anything else. Ricky *my boyfriend), is unbelievably great. We just went on a dinner cruise last night and he helped me make sure that the food on the cruise wa safe for me. He is always helping me and encouraging me to do great things with the knwledge I have and the passion I have for the disease. I have the passion to help others have a better eperience than I had with it and to get the information out into the world so that it can hopefully become a more well known disease and more help can be given. My boyfriend and I were in Manhattan last night and we passed by a small, nothing place, on 10th avenue and 23rd street which haf gluten gtrr baked goods. The place was a small bakery and the food looked great....I would have bought something, but I was trying to save my appetite for the cruise. I plan on being more active, especially because I am a site leader. Thanks for understanding!
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January 10, 2009
New added feature to my Celiac
So...I have recently discovered that I am also Lactose intolerant to an extent. I can't have anything with whole milk in it. It is so horrible having this uncontrollable feeling of being sick to your stomach everytime you have a little milk. Yuck!!! But since I have been put on Align, I have been feeling much better and not been having as much Celiac pain at all.....which for me, is a wonderful thing! :)
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January 04, 2009
Genes
So...I have just been informed that both my brother and my father have the celiac gene. On a scale from 1 - 8 my brother is a 7 and my dad is a 6 pretty much saying that my brother has an extrememly high chance of getting the Celiac disease...oh...I can only hope that he won't ever have to suffer even the tiniest bit. I don't want him to ever feel the amount of pain that I felt. I don't think I could ever stand watching him suffer. I hate that people feel guilty about my disease. It is hard enough for me to wake up every morning and remember that I have a disease...I just wish for even one moment during the day that I didn't have to think about this stupid disease.
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December 28, 2008
My visit with my GI
So...I went to the GI's office on Wednesday only for him to tell me that there really isn't anything I can do about my attacks except take my intestinal spasm pills. Then he checked my stomach only to find that I was beyond bloated and that was the reason why I was feeling so horrible! So he put me on something called Align. This Align is a medication that I am supposed to take everyday (possibly for the rest of my life) to stop the bloating. BUT...first it bloats you like crazy for a few days and then all of a sudden the bloat decreases and you're back to normal. Well, now that I am on this new medication, I am feeling much better.
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December 21, 2008
December 21st, 2008
So of course I have great plans to wake up and finish my last minute Channukah shopping....The first thing I do when I wake up is turn over and answer the ringing phone...my best friend Melissa!!! We talk for about a half an hour. After we finish talking, I begin to get dressed and all of a sudden another wave of shooting pain on my left side...now I have to go shopping while doubled over. What a life!